Sorry, Not Sorry

"Life is Amazing. And then it's awful. And then it's amazing again. And in between the amazing and awful it's ordinary and mundane and routine. Breathe in the amazing, hold on through the awful, and relax and exhale during the ordinary. That's just living heartbreaking, soul-healing, amazing, awful, ordinary life. And it's breathtakingly beautiful." -L.R. Knost 

I almost started this post with "sorry it's been awhile...." but then stopped myself. Our family has been relishing in the mundane, beautiful, everyday life that this past year has brought. I'm normally that annoying apologizer, you know the one that apologizes for everything, even when it doesn't make sense to..."I'm sorry"🖐. But this, I can't apologize for the exhale that an ordinary, surgery-free year of life brings.

As the post hints, the exhale is soon ending. In March Josie and I made a quick (unexpected) trip to New York to meet with her surgeons, as well as to meet a new Maxillofacial Surgeon. We left for New York expecting that one surgery would likely be recommended but left with 2 surgeries in their books.

The first will be next Thursday, May 9th and will be focused primarily on and in her mouth. The surgeons will work to clean up excess tissue inside her cheek, on her tongue and de-bulk her lower lip; making room for braces (which Josie is very excited about).

The second surgery will be in July and will focus on reshaping facial bones. This surgery will require more of a recovery time and a hospital stay.

We have had very little time to dwell and worry over this, which is probably a blessing but its hard to distinguish at this point. I've had glimpses of time here and there where it hits me and the tears come but mostly I'd say we're functioning on auto-pilot. Keeping all the plates spinning.

I'll leave you with a sweet recreated picture from our March trip. The photo on the left was taken in November of 2011. It was just the two of us. Josie was 4 years old, it was her first plane ride, our first trip to New York and our first time meeting her future surgeons. I was terrified to be navigating that big city alone and taking a chance on a doctor 1000 miles from home (because who does that??!). We could have never imagined the journey we were about to embark on or how difficult it would prove to be. But I know without a doubt that these are the "good old days" that we're living in and one day not so far off, these will be the days we miss.  ~Erin 




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