Sunday

My dad always use to say that Sunday's can be the loneliest day, well today I have to agree with him. Josie and I said a very tearful good-bye to Dave, Brooks and Amelia late this afternoon. The past 8 days have been an absolute whirlwind, but bottom line...everything about it was better because we were together. Watching them drive away tonight broke my heart, but this time it also broke Josie's. When their car disappeared we both walked back to our room, climbed into the same bed and finished crying. Nine more days... 

Josie is now sound asleep next to me and well on her way to tackling the week. After I bring everyone up to speed I will be right behind her, but first...updates. My previous post was from last Thursday, Josie was steadily making improvements and Physical Therapy had her starting to walk. Moving forward to Friday, instead of being reminded to walk by her nurse she was asking the nurse to disconnect her from all her lines so that she could go for walks. At one point she spent an hour playing in the PICU play room, a huge leap from just a day before. By Saturday, all her lines were disconnected including the doppler lines monitoring her new muscle's blood supply. She was discharged shortly after lunch on Saturday and we were all doing a celebratory happy dance! So much relief (that we are still letting ourselves accept).

From the time Josie came back to the hotel yesterday she has been asking to walk with us to different places; to get food, go to the lobby, etc. So today when she asked to walk to the park we agreed and took a short walk as a family to Bryant Park. She was pretty tired by the time we walked back but she was very pleased with herself. While she is still very swollen, she is rapidly moving in the right direction.

This week we have several follow-up appointments with her doctors, but for the most part it should be smooth sailing. Our goals for the week are to catch up on sleep and to just enjoy the time we have here, together. I will try to post again before the week is up. Until then, lots of love from NY.