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Josie

This blog maps the medical journey of Josie Grace, a brave young lady born with an ultra-rare craniofacial condition called Facial Infused Lipomatosis (or Facial Infiltrating Lipomatosis (FIL)). Our story honors all the beautiful "rare birds" that have journeyed before us and to those little ones who are yet to be. Perhaps our scars can be someone else's hope...

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Showing posts from July, 2017

Surgery date....

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More Information:

WonderFIL Smiles, a FIL Community
Vascular Birthmark Institute of New York
Jackie Diels, Facial Retraining
Children's Craniofacial Association
Wonder Schools, Educational Resources
National Organization for Rare Disorders
Miracle Travel Works
Ronald McDonald House Charities

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Meet Josie's Surgeons

Dr. Milton Waner, M.B., CH.(WITS), FCS (SA), MD and Dr. Teresa O, MD, M. Arch (click photo to learn more)

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Archive

July 20191
May 20191
April 20191
April 20181
November 20171
September 20171
August 20177
July 20171
April 20171
March 20171

August 20162
April 20161
February 20161
March 20151
November 20145
June 20146
April 20141
March 20131
November 20121
September 20121
August 20128
July 20129
May 20123
April 20128
February 20123
January 20128
December 20111
November 20111
October 20111
May 20091
April 20091
March 20092
February 20096
January 20098

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Family

Josie with twin brother, Brooks and little sister Amelia (a.k.a. Millie)

Parents

Dave & Erin

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