Time

I am sorely overdue for sharing updates regarding Josie, but the truth is, since my last post (almost a year ago) there really hasn't been much to share. There has been a lot of boring footwork since then but I will spare you the details of all of that. The quick update is this...we did end up seeing a Maxillofacial surgeon in Iowa City last spring (at Dr. Waner's request) and his opinion was that Josie did not need to have Orthognathic surgery (reconstruction of the jaw) at this time. His recommendation was to monitor her on a yearly basis and if need be, have the surgery when she's 16. While we were very relieved to hear this, Josie's doctors in NY had warned us to expect this answer from most surgeons.

Fast forward 11 months and today you find us planning an April trip to New York. Josie's doctors would like to see her for a consultation before beginning the facial reanimation process, we are also going to be meeting with one of their recommended Maxillofacial surgeons while we are there. At this point details are pretty vague beyond that. We are very anxious to get our face time with her team of doctors and to have our numerous questions answered.

This whole process is very consuming and triggers a lot of emotions and anxiety (for our whole family). We have hesitated to talk about this trip, even with our extended family just to spare Josie's nerves. She has a lot of anxiety about surgeries and hates for us to talk about it in front of her. We're hoping this can be our quiet way to share updates without causing her added anxiety. Thank you to all of you who continue to ask about Josie and lend your support! It's hard to believe that this whole process began just 4 short years ago.