Change of Plans
















Since January Dave and I have been busy planning Josie's upcoming surgery with Dr. Waner; booking flights, reserving housing, etc. Everything had been checked, confirmed, and double checked (surgery date included). Last week I emailed Dr. Waner's P.A. for the pre-op physical forms and she called back Friday stating that the surgery date needed to be moved from the 21st to the 25th of March. She said this was due to the availability of the nerve monitor at the different hospital we'd be at (I'll save you an ear-full and just say the change of hospitals is a story for another day). Anyway, the P.A. was going to call us back to confirm the new surgery date later on Friday, but when she called back she gave us some news we were not expecting. Evidently Dr. Waner decided to look through Josie's chart and he now wants to post-pone her surgery 6-8 months. He wants her to be 6-years old now, to grow a little (he says he didn't realize how young she was). I have been beyond disappointed, I had to give myself the weekend to even type this. I'm trying really hard to accept that this has all happened for a reason and I need to trust it, but right now all I can see is that someone dropped the ball. We have been trying so hard to have the bulk of her procedures behind her by kindergarten and now it appears it will land in the middle of it. Again, I'm trying to trust that there is a bright side to this, I'm just not completely there, yet. Besides venting, we wanted to update everyone on Josie's surgery changes. I'm not sure when we'll know any news on future surgery dates, but I'll be sure to post when we find out.
Erin

Comments

  1. Sandy Martin - Jesup, IAMarch 5, 2013 at 11:49 AM

    Oh, Erin....I feel so badly for you. To get all that "stuff" set up, let alone your emotional "stuff" and then to have it canceled had to be disappointing to say the least! You'll get through this because from following your blog I've seen what a strong woman/mother/wife you are...even though I don't know you personally. I'm actually a friend of Christy's and that's how I first found about what Josie and her family are going through and it's been quite an ordeal. I was going to say that I'm not sure I could do it but I know, as mothers, we do whatever it takes - even when it's way outside our comfort zone! Try to keep up your attitude of "things happen for a reason" and that 6-8 months will be here before you know it. At least you won't have any winter storms to be concerned with! Take care!

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