This blog maps the medical journey of Josie Grace, a brave young lady born with an ultra-rare craniofacial condition called Facial Infused Lipomatosis (or Facial Infiltrating Lipomatosis (FIL)). Our story honors all the beautiful "rare birds" that have journeyed before us and to those little ones who are yet to be. Perhaps our scars can be someone else's hope...
Josie went in for surgery a little before 2. Going to be a lot more to this surgery than we were originally told. I can't explain it all now but expect another 5 hour surgery. I'll post when she gets out of surgery.
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